I spent a day with children with Cardio-Facio-Cutaneous and Noonan's Syndromes. We worked in conjunction with dentists and other medical care providers giving eye exams to collect data for these rare conditions. There's only 200-300 individuals with this condition WORLDWIDE! We saw about 75 of them ... Truly an amazing experience ...
Check it out ...
http://www.cfcsyndrome.org/syndrome.shtml
